Updates In the media: Massachusetts Mom Convinces Scientists to Find Potential Cure for Daughter’s Rare Disease: ‘Anything Is Possible’ (People) Jocelyn Duff honored by Science Channel (Boston Globe) Science Channel’s ‘Science Super Heroes” Initiative Recognizes Jocelyn Duff as June 2017 Honoree (also watch the video) Miracles from Maine (Lewiston-Auburn Sun Journal) Talia’s Story (WHDH – 7 News) How We Make Our Own Hope Amidst an Ultra-Rare Charcot-Marie-Tooth Diagnosis (The Mighty) Their child struck by a rare disease, an Ipswich family fights back (Boston Globe) Family fights to find cure for daughter’s rare disease (WCVB TV) With no time to lose, parents drive CMT4J gene therapy forward (BCH’s Vector Blog) Jackson Lab Helping 11-Year-Old With Rare Disease In Search For Cure (Hartford Courant) Interiew with Cure CMT4J’s Jocelyn Duff (Rare Disease Report) Mom on a Mission: Jocelyn Duff of the Talia Duff Foundation (Macaroni Kid) Race for cure continues for Ipswich girl (Ipswich Chronicle) A Driving Force: The Duff Family’s Fight for a Cure (Ipswich Neighbors) Ipswich family fights time to find cure (Ipswich Chronicle) First Day of Vacation Spent Fundraising For Classmate (theLocalNe.ws) Check out our blog: People Magazine Features Talia’s Story and Cure CMT4J’s EffortsJune 29, 2017Reflections on FatherhoodJune 19, 2017On Mother’s DayMay 14, 2017Talia’s Story on Channel 7April 28, 2017WCVB-TV Boston: Family Fights to Find Cure for Daughter’s Rare DiseaseMarch 2, 2017Research Update: “Better than Anticipated”February 7, 2017From Diagnosis to HopeJanuary 27, 2017The Magic QuarterNovember 19, 2016Scientific & Medical UpdateOctober 25, 2016Welcome to EthanSeptember 21, 2016SeptemberSeptember 15, 2016Great PondSeptember 15, 2016Relaxing On a Fast-Moving TrainAugust 18, 2016Finding the Forever FixJuly 28, 2016Phase One Goal Reached!July 20, 2016
